Tayla Kahui, left, felt utterly helpless as her daughter Journey, right, was covered in sores
A mother has revealed how she spent years watching her little daughter battle extreme eczema, feeling helpless at being unable to ease the pain.
Speaking to FEMAIL, Sydney mother-of-four Tayla Kahui said her six-year-old daughter Journey first showed signs of the skin condition when she was nine days old.
Then, when she was three years old, the mildly irritating skin condition worsened.
Within a year she was covered with oozing, infected sores that ruptured with play and became unbearable to the touch.
“I’ve never seen anything like this, she was bedridden for days because she was in so much pain,” Tayla said.
The mother covered her daughter in cold bandages and put her in bleach baths to try to minimize the pain – but that wasn’t enough.
“She let out a terrible scream when the water touched her, she got scared,” she said.
During Covid, the wounds got worse – the family went to doctors who were increasingly horrified by the boy’s open sores and painful flare-ups.
But nothing they suggested seemed to work.
“It got to the point where I had to wake up several times during the night to check her skin to make sure she hadn’t scraped it or that it wasn’t stuck to her clothes. I would even put cold wraps on her while she slept,” she said.
Journey had the painful rash all over her body, including her face, and weeping sores on her legs
Now she’s playing outside and is happy and confident – which makes her mum happy
“We’ve tried every steroid cream, every moisturizer, at one point I told the doctors to stop suggesting what might work and give me something that actually works.”
“I tried every cream they suggested and dabbed it on her foot first and she screamed, ‘Mom, it stings’.
The ones that didn’t burn on impact appeared to be worse drying Journey’s skin or trapping heat inside – which later led to more painful spots, the mother explained.
The family were then made aware of Journey’s egg allergy and were able to eliminate it from the household diet.
“She would even flare up when it was cooked indoors, the symptoms looked like her eczema,” Tayla said.
The mother of four was still frustrated. Eliminating Egg had minimized some of the extreme flare-ups, but her daughter’s skin was still constantly bruised and covered in wide, violent-looking sores.
Her before and after photos here show how much her skin has cleared up after a month of using the new lotion
Soon their fun, charismatic daughter was just a shadow of herself.
“She was afraid to go to school because she didn’t want other kids to see her. It was all over her face and arms,” Tayla said.
“She even refused to wear short sleeves because she didn’t want her arms to be seen.”
The kids Journey dated were even reluctant.
“They didn’t want to accidentally hurt her and were always afraid of being too rude,” Tayla said.
Tayla says she’s so proud of her daughter’s skin now – and says the family has a much happier dynamic
Journey had the sores all over his body and flared up every day for over a year
The boy was being looked after by eczema specialists at Sydney’s Royal Children’s Hospital but they ran out of ideas.
Then Tayla saw an advertisement for Manuka Biotic on her Facebook page.
“It kept popping up as something I’d be interested in, at first I ignored it, then my partner and I decided we’d give it a try.”
The brand had reviews from other parents who found it helped their children.
“But I had read hundreds of product reviews before and nothing had worked. I was just wondering why my child,’ she said.
As they arrived, Tayla felt the familiar sense of hope mixed with fear.
“I started on her foot like I always do, and she didn’t say anything,” she said.
The boy became afraid to leave the house and was often bedridden
Now she’s enjoying a rough life – and doesn’t have to be afraid to open up wounds
Day after day, the mother continued to spread the lotion on her baby’s body and even applied it to her face.
“Within two weeks we had given up the idea of other creams, it worked so well,” she said.
“Every day it seemed to get better and better and she had no problems with it – no burning or crying to take it off.”
Within a month the eczema was gone.
“We put it on every day and when she gets a flare it’s usually a bit of dry skin around the elbows and knees and we put some lotion on a wet pack and it removes it right away.”
The young woman now sometimes wears long sleeves – but she used to always wear them to hide her arms
Journey was afraid to go to school because she didn’t want other kids to see her skin
Tayla was worried Journey would have scars from her years of blistering – but says they are minimal.
“There are some on her arms, but not on her face,” she said.
Not surprisingly, the youngster has become much happier.
“She was always quirky and confident at home – but now she’s like that everywhere.
“She’s the funniest little kid who just loves to perform. She also loves all things girly like makeup and dresses, which she previously avoided because of her sore skin.”
Tayla says sharing Journey’s story is important to her because she used to scour the internet for tips.
Manuka Biotic is a skincare line that’s good for many skin types – the company uses New Zealand honey in its ‘miracle’ lotion
“It was an absolute game changer for us. Getting to this point was so heartbreaking, with each new proposal there was nothing but pain and disappointment.
The hospital has now added the brand to its list.
Journey’s skin has been good for almost a year, giving her mother hope for her future.
“They were shocked at how well it worked because they had never heard of it, now it’s one of the lotions they suggest to other parents,” she said.
Manuka Biotic is a skincare line that’s good for many skin types – the company uses New Zealand honey in its ‘miracle’ lotion.
https://www.dailymail.co.uk/femail/real-life/article-11535035/Mum-reveals-horror-caring-daughter-extreme-eczema-s.html?ns_mchannel=rss&ns_campaign=1490&ito=1490 Mom reveals her horror at caring for daughter with extreme eczema